Wegener’s Granulomatosis

What is Wegener’s granulomatosis?

Wegener’s granulomatosis is a uncommon type of inflammation of small arteries and veins (vasculitis). It classically involves inflammation of the arteries that supply blood to the tissues of the lungs, the nasal passages (sinuses), and the kidneys. “Incomplete” forms exist that only involve one of these areas. When both lungs and kidneys are affected, the condition is sometimes referred to as generalized Wegener’s granulomatosis. When only the lungs are involved, the condition is sometimes referred to as limited Wegener’s granulomatosis.

Wegener’s granulomatosis usually affects young or middle-aged adults. Although it is uncommon in children, it can affect people at any age. The cause of Wegener’s granulomatosis is not known.

What are symptoms of Wegener’s granulomatosis?
Symptoms of Wegener’s granulomatosis include fatigue, weight loss, fevers, shortness of breath, bloody sputum, joint pains, and sinus inflammation (sinusitis). Nasal ulcerations and even blood nasal discharge can occur. Other areas of the body that can also become inflamed in patients with Wegener’s granulomatosis include the eyes, the nerves (neuropathy), the middle ear (otitis media) and the skin resulting in skin nodules or ulcers.

The rest of this article is here.

Just a note: Even though this disease is rare in children, it can still happen in children. I know patients as young as 9 years old getting this disease. Unfortunately, if you think your child has the disease, you (the parents) will have to press and push… use the Vasculitis Foundation consultants… because some doctors just have a block when it comes to this disease and children.

Also, don’t believe everything you read online about this disease. Even though this disease cannot be cured as of yet, patients can live long careful lives with treatment. Also, this disease normally affects sinuses, lungs, and kidneys; however, this disease has been known to affect the brain, skin, eyes, and other organs. It is a systemic disease (meaning it can affect whereever there are small blood vessels).

For more information about Wegener’s Granulomatosis, go to the sidebar in this blog. There are two places that can give you good infomation: The Vasulitis Foundation and John Hopkins Vasculitis Center.

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About Cyn Bagley

My life is a mixture of travel, jobs, and disease. You can find some of my novels on amazon.com under the name Cyn Bagley.
This entry was posted in Disease, Wegener's Granulomatosis. Bookmark the permalink.

2 Responses to Wegener’s Granulomatosis

  1. Hey I’m a weggie too!!! Not many blogger weggies

  2. Hi Kimba…Yes, there are few weggies and fewer weggie bloggers. :-)Cyn

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