UNC Kidney Center-Learn about kidney diseases such as Anca Vasculitis and FSGS, get to know our faculty and staff, research our fellowship program, and much more.
First paragraph on the site (the title of this post is linked to the kidney center):
Welcome to the ASSIST Study web site! The purpose of this web site is to keep you updated about the study results. Recruitment and data collection for the first survey ended in February, and I anticipate that data collection for the second survey will end in April. You may want to visit this page periodically because we will post result updates during the coming year.
My Comments: I participated in a survey last year, but I am not sure if it was this one. Anyway since I have kidney disease associated with my Wegener’s Granulomatosis, I am pleased when certain organizations and medical institutions are interested in helping vasculitis patients. Because we are considered an “orphan disease” (very few people get this disease), most of our drugs are not designed for our disease. Thankfully a few of the drugs for RA can be used to help us.
So yes I am grateful when I find these types of services.