Here is another good website for Vasculitis patients in Canada. The researchers in this group have been collecting DNA for future research into the disease. Since these diseases (there are 15 types) are rare, it is always good to see support for patients.
They also need donations so that they can support research into the disease. Unfortunately, Vasculitis is still one of the hardest diseases to diagnose. Plus a diagnosis and treatment does not cure the disease. Many patients also have secondary problems caused by the disease and medications. For instance, I will always have kidney problems, hypertension, and fatigue due to the effect the disease had on the blood vessels going to my kidneys.
We are grateful for the support receive. We need more to eradicate this disease.