In July 2008, when I was 41, I started to get some jaw line pain that went to my ear. I then started to get severe head pain. Treated as an ear infection, I finally got to the point of dehydration and such severe head pain that I couldn’t take it any longer.
The rest of the story is here on the Vasculitis Foundation.
What I have to say: Many WG patients have the same story of being diagnosed with one problem like ear infection and then it changes to a severe auto-immune disease. In my case my eyes turned red and then my kidneys failed. Other patients were first diagnosed with lung disease. Although diagnostic procedures for this disease are getting better, we do need to be diagnosed sooner.