The patient confronted with the diagnosis of vasculitis is likely to exhibit psychological reactions similar to those observed in other chronic illnesses. Research has shown that shock usually accompanies the diagnosis of a chronic life‐threatening illness, and denial can be observed in a number of ways: ignoring the potentially serious meaning of symptoms, leading to delays in seeking medical care; and/or failing to acknowledge the implications of the diagnosis; and/or failing to follow treatment regimes during the rehabilitation phase of the illness.
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What I have to say: I few years ago I wrote an article about Stages of Grief: Dealing with a Chronic Illness. In the article I wrote in layman terms that losing life to a chronic disease is akin to the stages of grief when losing a loved one. As a person with a chronic disease, I have lost my lifestyle of travel, work, and health.
Having to limit my life due to fatigue has stopped us from exploring the world around us. Many of us try to live normal lives or as we say limited normal lives, but it take years to come to terms with our new realities.