When someone has a friend or family member who has been diagnosed with vasculitis, that person might not know what to say or what to do. Delesha Carpenter, PhD, MSPH helps friends of vasculitis patients understand what it is like to live with the disease in this two-part podcast featuring Dr. Ron Falk, UNC Kidney Center Director and Dianne Shaw, Past President of the Vasculitis Foundation and vasculitis patient. Dr. Carpenter is a Research Assistant Professor in the Division of Pharmaceutical Outcomes and Policy at the Eshelman School of Pharmacy at UNC Chapel Hill.
The Podcast is here.
What I have to say: One of the worst things you can say to a Vasculitis patient who has been under treatment for years is “but, you look so good.” The patient hasn’t felt good for as long as s/he has been diagnosed. S/he will look differently, usually gaining weight from prednisone, and feel different with fatigue. S/he will be depressed and struggling. The best thing you can do for your friend is to be there and to realize that your friend can never be the care-free friend of the past. This disease does not go away.