No one knew what was wrong with Tom Hopper. In 2007, at 64, the Baltimore accounting consultant began losing weight, which he welcomed at first because he needed to go on a diet. But a few months later Hopper was crippled by episodes of uncontrollable vomiting and diarrhea, sometimes for upward of seven hours, which left him dehydrated and delirious. Cramps in his legs were so painful that he often couldn’t stand up.
What I have to say: Many of us with Vasculitis disease have been misdiagnosed once or more times before we have gotten the right diagnosis and treatment. Treatment is essential for certain diseases and especially for WG.
This article has some really good info on getting the right diagnosis and treatment.