So at the beginning of this year, I started to have problems again. I thought I might be in a flare. However, when my doctor took some labs, my kidney creatinine levels were higher and my inflammation levels were about the same.
If you read some of my posts here, I have spent a lot of time dealing with Wegener’s Granulomatosis and kidney disease. At this point the C-Anca that I had in the early part of my disease is now gone. I’ve heard from other patients that when the immune system is suppressed for a long time, sometimes the ANCA levels will go away. I find that very strange. This doctor who I have seen since 2014 hasn’t seen C-ANCA or P-ANCA in any of my labs.
He did raise my Cellcept another 50 mg which calmed a lot of my symptoms, such as vomiting and pain. I still was having night sweats, diarrhea, and my body revved up so high that I was losing weight and couldn’t eat.
My rheumatologist suggested that I ask my primary care to check my thyroid again. According to the labs my thyroid was in the high normal range. Still I would run high and my emotions would go the same way, and then I would crash.
Finally my primary care ordered a sonogram and then a week later I had a biopsy. The biopsy showed a strong likelihood of cancer and they even named the type of cancer.
What’s even worse is that I spent two weeks trying to get an appointment from anyone so that I could get surgery to take out this supposedly non-lethal cancer. That was around the first and second week of February. When I finally got an appointment after talking to several doctors and even going to the ER, the appointments were for this week.
Seriously, I have cancer. I started this journey at the end of January… and now it is April before someone even sees me so I can have surgery? Thank you Obamacare.
So I have been miserable for at least four weeks as I fly, crash, and burn. Send good thoughts because I will need it for this week.