Category Archives: Vasculitis Foundation

Recycle Old Electronics and Make Money for Vasculitis

Recycle your old electronics for the Vasculitis Foundation. Thankfully to researcher, most of the WG and Vasculitis patients are living longer, sometimes limited, lives. But, it has been this organization, The Vasculitis Foundation that has been premier in providing research … Continue reading

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Kimberly’s Story – a Wegener’s Granulomatosis patient

The last couple of years The Vasculitis Foundation has been trying to put a human face on Vasculitis diseases. I have been in contact with Kimberly for the last few years. Most of us live far apart and in different … Continue reading

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Vasculitis Foundation Canada

Here is another good website for Vasculitis patients in Canada. The researchers in this group have been collecting DNA for future research into the disease. Since these diseases (there are 15 types) are rare, it is always good to see … Continue reading

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The Bear! John’s Annual Run Up Grandfather Mountain for the VF

My father was diagnosed with Wegener’s Granulomatosis (WG) on July 7, 2006.  My family was fortunate to find the Vasculitis Foundation.  The VF helped educate my family on the disease and more importantly helped find medical help for my father.  There is … Continue reading

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My Vasculitis Story

The entire story is linked on the right column if you ever want to read it again. My story is neither worse nor better than thousands of other Wegener’s Patients. I have left out a few details, but I think … Continue reading

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My Vasculitis Story – next chapter

At this point I should thank my husband. Without the constant care and worry, I might not have survived the first year of my treatment. A lot of things happened including we had to leave Germany in the middle of … Continue reading

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VASCULITIS AWARENESS WEEK – May 3 – 9, 2009

This is vasculitis awareness week in connection with other autoimmune diseases. I will be refreshing my information on Wegener’s Granulomatosis this week. If you are interested in supporting the Vasculitis Foundation for supporting research for these diseases you can donate … Continue reading

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