Update on my health

So far I have been in good health except for the propensity for getting various infections. The beginning of this year, I did something to my hip and couldn’t walk for a week. After resting, and then going to a chiropractor, I started walking a few minutes a day. This was around March.

I started to feel better and then began the infections. Once I got that under control, we started to have a smoke plume from the Yosemite Rim Fire. It was pretty hard on my lungs, sinuses, and eyes.

Thankfully the smoke and haze has gotten better in the last two days and I am starting to feel better again.

I found that I am having some rare side-effects from the generic Cellcept. Some of these include itching, UTIs, and other infections. My joints have been sore as well.

As for the disease, Wegener’s Granulomatosis, the meds have kept it under control. I have had some drug interactions between the Cellcept and my blood pressure meds so I am using niacin to keep my blood pressure under control So far, so good in that area.

So this is the State of the Union of my health. I am completely off the prednisone now, yeah. And, hopefully I can keep in good health for the next year. I will keep giving updates as well as any information that I find about Vasculitis disease and Vasculitis treatments.

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Can you read this drug label?

How confident are you that you take prescription drugs correctly? The instructions on the bottle’s label may not seem to be hard to follow, but more than 500,000 Americans misinterpret them every year.

We wanted to do a “spot check” and see for ourselves how different drug labels, bottle warnings, and consumer drug information leaflets compared with one another. So Consumer Reports Health staffers filled prescriptions for 5 milligrams of warfarin at five chain pharmacies near our offices in Yonkers, N.Y.: Costco, CVS, Target, Walgreens, and Walmart. The drug warfarin, also known by the brand-name Coumadin, is a commonly used generic blood thinner, which can cause dangerous bleeding if taken incorrectly.

The rest of the article is here.

What I have to say:

This particular problem could be dangerous when you have to take strong medications to keep your immune system under control. If you can’t read the directions, make sure you talk to the pharmacist (or call the doctor’s office.)

Also check your meds before you take them. Make sure the labels are correct and that you are taking the right amounts of the meds. If there is anything strange, take it back to your pharmacy. Even though the meds are prescribed, they are dangerous if taken in the wrong way or the wrong amounts.

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Rhino-sinusitis: Causes and medical treatment

Mr James W Fairley BSc MBBS FRCS MS
Consultant ENT Surgeon

What is rhino-sinusitis?

Rhino-sinusitis is the combination of rhinitis and sinusitis.

  • Rhinitis (Rye-NIGHT-iss) is inflammation of the lining of the nose.
  • Sinusitis is inflammation of the sinuses.

As part of the same air passages, and lined by the same mucous membrane, the nose and sinuses tend to be affected by the same problems. Rhinitis is commoner than sinusitis, and causes similar symptoms. Most cases of sinusitis start off as rhinitis, so we usually get rhinosinusitis rather than pure sinusitis. Nearly all cases of sinusitis are in fact rhinosinusitis.

The rest of the article is here.

What I have to say: Rhino-sinusitis is a common indicator of Wegener’s Granulomatosis. When I was first being treated, my nose would drip with a thin secretion. Since inflammation is a part of Vasculitis, and inflammation can cause rhino-sinusitis, it seems to go hand in hand with our disease. This article has some really useful information to keep you nose and sinuses in good shape.


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New treatment of subglottic stenosis due to Wegener’s granulomatosis, Acta Oto-laryngologica, Inform

The abstract is here.

What I have to say: This is some good news for those who have this type of problem. I don’t have this problem specifically, but I have heard that it is very scary when the throat closes and the patient can’t breathe.

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Stress triggers disease flares in patients with vasculitis

Study shows psychological health important to controlling Wegener’s granulomatosis

In patients with a devastating form of vasculitis who are in remission, stress can be associated with a greater likelihood of the disease flaring, according to a new study by investigators at Hospital for Special Surgery (HSS).

This is the first study to suggest that mental health is a risk factor in patients with vasculitis, a group of autoimmune disorders characterized by the inflammatory destruction of blood vessels. The study, in a form of the disease known as Wegener’s granulomatosis (WG), will be presented on Nov. 8 at the American College of Rheumatology’s annual meeting.

The rest of this report is here.

What I have to say: The patients have been saying that stress is a factor in flares since I got the disease nine years ago. We have been telling each other to keep the stress under control so I am glad to see that the HSS is now giving credence to this idea.

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Vasculitis PSA – Angel of Mercy

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Radio Interview about Vasculitis Foundation Canada

The link to the interview is here.

What I have to say: Vasculitis strikes many different types of people in many countries. I am always pleased to hear about the efforts of other foundations to help people with these diseases.

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